I wish I had my own pain scale. It would start at 10 then go from there. Assuming my pain is lower is frustrating. Trying to explain to anyone, this includes any medical professional that I ALWAYS have a migraine is difficult. Most people can’t comprehend it so it gets sort of ignored. Or sometimes I’m told I’m lying. Because this is something to lie about. Excruciating pain in my head, neck, and stomach, please, give me your attention. You can tell I want attention by how often I hide in my bedroom in the dark not interacting with anyone. I can’t even blog regularly, or use social media, or text. I love all this extra attention (sarcasm if you can’t tell).
Why am I posting at 3:30 am? At 8:30 last night Dianne went to take a shower so I laid down with every light source off to try to help my head a little. It was finally dark outside and barely starting to cool off (our house doesn’t seem to have insulation or any seals around its doors and windows). I laid down hoping my migraine would calm down and ended up falling asleep somehow. Of course this means I must wake up at 2am, instead of sleeping like a normal person till at least dawn (which is around 4:30am). On the upside if I end up not being able to sleep then I will hopefully be able to fall asleep for my sleep study that is tonight at 8pm.
My body refuses to cooperate to let me sleep as well. My head is doing is usual pa in that feels like my brain rattling around in my skull, my neck hurts, my hips/lower back/right leg are a tangle of screaming pain. Plus my stomach assures me it needs to be evacuated. Who lives like this? Surely there should be some doctors or something that would look at this list and say “that is terrible, let me help!” Or at least a medicine that does that. Currently I have around 6 medications for these things. My favourite things about these medications is that most of them can’t be taken more than once or twice a week. The others are the side effects. Listed for fun:
Nausea medication causes headaches
Migraine medications cause vomiting, and rebound migraines
Narcotic pain medication causes severe itchiness, migraines, and vomiting
NSAID pain medication causes rebound migraines
Nearly all meds cause drowsiness
Nausea meds make me extra sensitive to sunlight.
Sleep medication causes migraines, vertigo, memory loss
Fibromyalgia medication causes panic attacks, vomiting, headaches, muscle pain (really it sounds like it causes fibromyalgia)
Most of these medications should not be taken together.
Good luck to my organs. Most of them are being damaged by medications that allow me even the most basic functionality. Well, twice a week anyway.